Showing posts with label Teal Tribe. Show all posts
Showing posts with label Teal Tribe. Show all posts

How We Raised Over $300 in One Week for Cancer Awareness


It is officially the halfway mark of Ovarian Cancer Awareness month! What have you done for yourself or others in spreading awareness and making a difference?

So far, my birthday week has brought about two successful fundraisers.

This year, my family joined me on Saturday, Sept. 14, in raising awareness for Georgia Ovarian Cancer Alliance's Teal Trot 5K Run/Walk at Chastain Park Amphitheater in Atlanta, Georgia.

My team, Abi's All Stars, raised $179.23 thanks to the following contributors: CM, PK, C&CN, EG, SC, JZ and DH. I want to thank all of you who donated or shared my information along with your peers! We got so so so close to my $200 fundraising goal and that makes me so happy!

Thank you especially to my mom, dad and fiance for walking with me on race day. It was a hot and humid Saturday morning walk through Chastain Park, and I think we all sweat more than we anticipated!

My mom and I wore teal tutus, so we still made it fun.

The event is the largest ovarian cancer awareness and fundraising event in Georgia, so I would love to see more participants and donors as the years go on.

This year, the event raised a total of $140,473.28 and hosted 1,054 participants of 88 teams on race day.

If you missed this opportunity to donate, please make sure to check out the "Donate" tab above and read about a few nonprofits that mean a lot to me.

For my birthday fundraiser on Facebook this year, I chose Lacuna Loft as the nonprofit to donate to. We exceeded my $100 goal, coming in at a solid $155 going straight to this program for young adult cancer survivors, patients and caregivers. This nonprofit serves these individuals at no cost and is an online platform for easier access to all.

Thank you from the bottom of my heart to the following donors: CM, RC, RE and LP! 'Thank you' never seems sufficient to express my gratitude to you all, but please know it really means a lot to me, and of course to others using these services. You are making a difference!

Earlier this year, I participated in one of their writing workshops which helped me continue to wade through what I went through two years ago. I met some amazing people and heard their powerful stories. I hope I can join another workshop soon, as well as one of their really unique book clubs!

To donate to my birthday fundraiser, there is still some time left! Please visit https://www.facebook.com/donate/404836313547510/404836320214176/ to donate, or https://www.facebook.com/pg/LacunaLoft/about/?ref=page_internal for more information about Lacuna Loft.

Take care of yourselves,

Abi

#30DaysOfTeal My Cancer Resume -- All Things Ab

Abigail M.
abimarmuro@gmail.com
Somewhere in the world of survivorship

Skilled in advocating for patient rights and preventative medicine. Experienced survivor with knowledge of slowing down and listening to your body. Notable vegetarian in sustainable consumption. Ability to recognize what's important in life and that it's time to start living.

Personal Information:______________________________________
Date of Birth: Sept. 10, 1996
Place of Birth: Wisconsin

Life Experience:___________________________________________
American Cancer Society
Ovarian Cancer Patient
Overlooked missed periods Sept. 2016-Mar. 2017
Diagnosed July 26, 2017
Underwent chemotherapy Aug.-Oct. 2017
NED since Nov. 2017

History:__________________________________________________
Fall 2016-Spring 2017:
Series of missed periods
Uterine/pelvic ultrasound

May 2017:
Mass found on left ovary in ultrasound
Referral to oncologist

July 10-11 2017:
Exploratory surgery and tumor removal
Left ovary and fallopian tube removed with stubborn tumor
Stayed overnight with complications due to anesthesia

July 26 2017:
Oncologist confirmed malignancy with staging from Mayo Clinic
Stage I Grade IIa Sertoli Leydig Cell Tumor of the left ovary

August 2017:
Began three rounds chemotherapy - Bleomycin, Etoposide, Cisplatin
Prescribed 24/7 nausea patch

September 2017:
Lost hair
Complications with blood cell counts
Weekly shots of Neupogen to increase white blood cell formation

October 2017:
Finished extended chemotherapy schedule

November 8 2017:
CT scan of chest, abdomen and pelvis

November 10 2017: 
Call confirmed No Evidence of Disease (NED)

February 2018:
Hair started growing in

May 2018:
CT scan to follow up six months post-treatment
Polyp in gallbladder

August 2018:
Ultrasound followup on gallbladder polyp
No growth

November 2018:
One year NED

July 2019:
Two years post-diagnosis

August 2019:
Memory problems continue - "Chemo Brain"

Present:
Balancing fine lines between patient, person and advocate
_______________________________________________

Now on Instagram! @AllThings_Ab

A little more about my cancer diagnosis in detail
PC: Nicole De Khors


Goodbye August: Hello Ovarian Cancer Awareness Month

30 Days of Teal Series Starts Today on All Things Ab Blog and Instagram

Welcome to my 30 Days of Teal series!

August has come and gone, and thank goodness because it was the longest and most crazy months of 2019. I moved across the country again, started my new position as editor-in-chief of my university's newspaper, and began the final fall semester of my undergraduate career. The good news is I hit the two-year mark since my diagnosis!

But what about September?

September is my favorite. What's not to love? Football, my birthday, childhood cancer awareness, and perhaps closer to home -- Ovarian Cancer Awareness Month.
Officially hit two years since ovarian cancer diagnosis
New headshot for the paper!
PC: Kevin Barrett

This month deserves way more attention than it gets, especially as everyone's minds are clouded with the return of football and a new academic year, right before everyone starts to "think pink" for October. But what about the world's "silent killer" for women?

According to the Centers for Disease Control and Prevention, 20,418 new cases of ovarian cancer were reported in 2016, the latest year for which incidence data are available for 100 percent of the population. In the US alone, 14,223 women died of ovarian cancer, and for every 100,000 women in the US, 10 new cases were reported.

And it happens to more than just our beloved elderly.

I was diagnosed two years ago, right before my 21st birthday. Definitely not your traditional candidate for this kind of cancer, but silent it indeed was. I had no symptoms or warning signs, and I really didn't have any checkmarks in the risk factors column other than stress.

Ask yourself, how much do you know about gynecologic cancers? Take this CDC quiz to test yourself. More importantly, schedule an annual exam with your gynecologist. They're not that scary, I promise. And everyone needs one. Your health is an investment.

Ovarian cancer, and all of its specific little kinds, has no known cause to this day. This makes knowing the risk factors an imperative part of every woman's knowledge. Risk factors include:

  • Age: the older you are, the more risk you naturally pose in being diagnosed due to hormones
  • Genetics: If you didn't pick your parents well enough... kidding! Our genes know and control our [good and bad] fate before we even exist
  • Family history of ovarian or breast cancer: increases your risk. You should let your medical care team aware of your history as you may need to start your screening at a younger age
  • Previous medical conditions of the reproductive system

Ignite the spark in Ovarian Cancer ResearchAdditionally, the use of fertility treatments, estrogen hormone replacement therapy, and/or lack of pregnancy may also increase your risk.

Ovarian cancer is known to be deadly because in its early stages, it shows little to no signs or symptoms. It often goes undetected until its too late and spreads to the abdomen and pelvis.

It's called the "Silent Killer" in women for many reasons. First, even in its late stages, ovarian cancer mimics non-life threatening conditions. Symptoms such as discomfort, bloating, swelling, frequent urination, weight loss and constipation are among the many things a proper diagnosis is mistaken for.  Second, the disease is very hard to diagnose.  The lack of effective screenings makes early detection difficult.

Pay attention to your body; know what is normal for you. Make healthy lifestyle choices. (such as: eat a diet rich in fruits and vegetables; exercise regularly; maintain a healthy weight; avoid smoking; and practice safe sex.). Know your family health history. Share it with your doctor. Get the HPV vaccine if you are at an age when it is recommended. Get screened for cervical cancer regularly.

Quick Facts to know according to the NOCC:

  • All women are at risk
  • An estimated 1 in 78 women will develop cancer in her lifetime
  • A pap smear test will not detect ovarian cancer
  • Number 1 cause of gynecological cancer-related deaths
  • Fifth leading cause of all cancer-related deaths
  • When diagnosed and treated in the early stages, the 5-year survival rate of ovarian cancer is 90%

Take the quiz to find your risk.

If reading any of this concerned you, please know that I am here to talk. Listen to your body, call your doctor to schedule an appointment, print and fill out this very helpful resource to bring to your appointment.

I hope my 30 Days of Teal series helps educate and bring all of us closer as we learn more about this aggressive disease. You can expect to read more about my story, my cause, and my hopes for the future for myself, those trying to prevent disease, and other survivors alike. Future posts include how to help yourself or others through chronic illness, how to donate to those in need, and other things the community needs bringing to the light. I will be sharing resources, research articles, events and [hopefully] insightful pieces to get you thinking and moving toward spreading awareness of ovarian cancer.

Make sure to sign up for email notifications in the sidebar for every time I post throughout this series, and before you forget, make sure to visit my GOCA Teal Trot 5K run/walk page to join or donate!

What you should know about Ovarian Cancer Awareness in SeptemberKnow that you have my support as a resource who's been there before. Don't be afraid to reach out!

Take care of yourselves,

Abi

What It's Like to Lose Your Hair (When Your Oncologist Said You Wouldn't)

09.23.2017
Why do we care so much about our hair? It's a question we seldom ask because we just really care for and identify with our hair -- plain and simple. It is quite literally part of us, and I never highlighted that thought as much as I did until I lost all of mine.

Let's take a little recap down memory lane, shall we?

July 26, 2017.

The first few words I heard out of my oncologist's mouth in response to "was it cancerous?" was: "Yes ... but at least you get to keep your hair!"

... To which I lost my hair approximately six and a half weeks later. All of it.

A day before my 21st birthday, actually.

It wasn't your typical scene in the shower where I looked down and found clumps of hair falling out to my surprise.

No, it was more painful than that.

You see, I wasn't expecting to lose my hair. So I did absolutely nothing with it, aside from wash it. Days were long from chemotherapy, so I lived in hats. I threw my hair into a low bun, messy as all get-out, and garnished it with a frumpy baseball cap to hide the mess and, let's be real, hide my face.

About four weeks into this fashion statement, my hair started to become matted. I assumed it was from never brushing it. It got messy under that hat anyway, why put in more effort?

Well, the hat ended up pushing all of the hair down and into mini dreadlocks. I didn't care because I slept most of the time, and when I was awake, I was in said hat.

My scalp hurt all the time. One day, I took a shower and just could not run the shampoo through the dreads anymore. I tried to clean my scalp the best I could and said "to hell with the rest."

Showering was a pretty long process, so I went downstairs after I was done and asked my mom to brush my hair like she used to when I was a little girl.

It hurt.

She brushed slowly, and carefully, breaking the chore into small sections. More hair was coming out than was getting brushed, and I didn't notice it until about halfway through the job.

By the end of it all, there was a clump of hair sitting next to us on the couch big enough to make a wig out of.

I didn't look bald or bald-patched from what I could remember of that night, but I did have way less hair than I did when I woke up that day. Granted, I had very long, very thick hair, and a lot of it. That was probably the first time it was all brushed out in weeks. By the time my mom was done brushing it all out, I just looked like someone with very thin, fine hair.

But my scalp continued to hurt, despite being more gentle with it. I still wore hats and that's probably what did it. I actually later learned that it's very common for the hair and skin to hurt or even itch as it falls/comes out.

I had a conversation with someone who had a similar experience and described it to the T when recalling what it was like to lose the hair on her arms and legs. That was actually a good part for me. I always hated my arm hair. It's funny how we can hate the stuff on our body and love the rest on our head.

The day before my birthday I had had enough. The next thing I knew, I was kneeling outside on a cushion from the patio furniture. Chris took a tickly-buzzcut-man thing to my head, and ten minutes later I was bald. Baldish.

It wasn't until my next round of chemo that the tiny hairs fell out once and for all. Such a weird thing to wash your hair with baby soap and still look down to see little hairs going down the drain or sticking to my lathered hands.

Hair is an emotional thing.

When I lost it, I was upset that I not only had "Cancer Patient" written right across my white, shiny skull, but I also was this 21-year-old in college who was supposed to be in the "best years of her life." Seeing all these college girls on campus and thinking to myself, these are the years everyone says is their prime and that was stolen from me.

Hair is truly part of our identity, and us feminine women love to play with it and style it and just have it...

Treatment ended in October 2017 and my hair started to grow back in February 2018. I received compliments from the day I decided to leave my wig at home. So many people said it fit me, or that they wish they were brave enough to have a hairstyle like that ... but it didn't phase me at the time.  I certainly didn't choose that haircut but I obviously wasn't going to explain the entire nine yards to strangers. I already felt like I had a neon target on my back that made me look different from everyone else on campus. Not to mention, finding an eyebrow pencil to match your new-colored hair is super difficult.

And besides, I felt like it didn't fit me. All the nice compliments in the world couldn't convince me I looked just fine. I didn't feel as cute as people told me I was and I sure as heck didn't have a clue what I was doing with it when I tried styling it.

I've learned a lot from losing my hair and regrowing it out. Mainly lessons of patience, but mostly that hair is just a thing. There are way more pressing issues in the world to worry about. Then again, there are also less pressing issues existing in the world, but for now, while I ride out this ugly phase, I'll learn to appreciate the simplicity and natural beauty of short hair.

About a year ago this month, I got my first haircut (You can read about it here). I had what they call "chemo curls" and they needed to be managed. My stylist ended up giving me the cut for free. Yuck. But nonetheless, she was kind for doing so.

Since then, I have had cuts every 6-8 weeks. It's funny, I always read about cancer survivors grieving about their haircuts because they want to hold on to every inch they've just got back. I can honestly say I've always been generally excited to care for my hair and make it as healthy as I can, but I can also honestly say I was feeling a little hesitant for the first time this last week.

05.09.2019
The Thursday before I moved to Wyoming, I decided to chop off more than half of my hair that I worked so hard to grow out. I was getting to this awkward 80's teenager stage so I figured all one length hair was probably a better path, even if it meant having chin-length hair like 7th grade Abi. Yuck again.

It's funny that I "Yuck" so much because I try and preach that the only reason we as a society "Yuck" is because we as a society deem long hair as beautiful and short hair as different.

I say, rock your hair, learn to love yourself and ultimately, just give yourself the tender care you may need right now.

After all, what makes you beautiful isn't the topical things in life.

But you don't need to have gone through cancer to know that.

Take care,

Abi

P.S. - Let me know in a comment below what your hair means to you. Let's share perspectives.

How We Raised Over $300 in One Week for Cancer Awareness

It is officially the halfway mark of Ovarian Cancer Awareness month! What have you done for yourself or others in spreading awareness an...