What It's Like to Lose Your Hair (When Your Oncologist Said You Wouldn't)

09.23.2017
Why do we care so much about our hair? It's a question we seldom ask because we just really care for and identify with our hair -- plain and simple. It is quite literally part of us, and I never highlighted that thought as much as I did until I lost all of mine.

Let's take a little recap down memory lane, shall we?

July 26, 2017.

The first few words I heard out of my oncologist's mouth in response to "was it cancerous?" was: "Yes ... but at least you get to keep your hair!"

... To which I lost my hair approximately six and a half weeks later. All of it.

A day before my 21st birthday, actually.

It wasn't your typical scene in the shower where I looked down and found clumps of hair falling out to my surprise.

No, it was more painful than that.

You see, I wasn't expecting to lose my hair. So I did absolutely nothing with it, aside from wash it. Days were long from chemotherapy, so I lived in hats. I threw my hair into a low bun, messy as all get-out, and garnished it with a frumpy baseball cap to hide the mess and, let's be real, hide my face.

About four weeks into this fashion statement, my hair started to become matted. I assumed it was from never brushing it. It got messy under that hat anyway, why put in more effort?

Well, the hat ended up pushing all of the hair down and into mini dreadlocks. I didn't care because I slept most of the time, and when I was awake, I was in said hat.

My scalp hurt all the time. One day, I took a shower and just could not run the shampoo through the dreads anymore. I tried to clean my scalp the best I could and said "to hell with the rest."

Showering was a pretty long process, so I went downstairs after I was done and asked my mom to brush my hair like she used to when I was a little girl.

It hurt.

She brushed slowly, and carefully, breaking the chore into small sections. More hair was coming out than was getting brushed, and I didn't notice it until about halfway through the job.

By the end of it all, there was a clump of hair sitting next to us on the couch big enough to make a wig out of.

I didn't look bald or bald-patched from what I could remember of that night, but I did have way less hair than I did when I woke up that day. Granted, I had very long, very thick hair, and a lot of it. That was probably the first time it was all brushed out in weeks. By the time my mom was done brushing it all out, I just looked like someone with very thin, fine hair.

But my scalp continued to hurt, despite being more gentle with it. I still wore hats and that's probably what did it. I actually later learned that it's very common for the hair and skin to hurt or even itch as it falls/comes out.

I had a conversation with someone who had a similar experience and described it to the T when recalling what it was like to lose the hair on her arms and legs. That was actually a good part for me. I always hated my arm hair. It's funny how we can hate the stuff on our body and love the rest on our head.

The day before my birthday I had had enough. The next thing I knew, I was kneeling outside on a cushion from the patio furniture. Chris took a tickly-buzzcut-man thing to my head, and ten minutes later I was bald. Baldish.

It wasn't until my next round of chemo that the tiny hairs fell out once and for all. Such a weird thing to wash your hair with baby soap and still look down to see little hairs going down the drain or sticking to my lathered hands.

Hair is an emotional thing.

When I lost it, I was upset that I not only had "Cancer Patient" written right across my white, shiny skull, but I also was this 21-year-old in college who was supposed to be in the "best years of her life." Seeing all these college girls on campus and thinking to myself, these are the years everyone says is their prime and that was stolen from me.

Hair is truly part of our identity, and us feminine women love to play with it and style it and just have it...

Treatment ended in October 2017 and my hair started to grow back in February 2018. I received compliments from the day I decided to leave my wig at home. So many people said it fit me, or that they wish they were brave enough to have a hairstyle like that ... but it didn't phase me at the time.  I certainly didn't choose that haircut but I obviously wasn't going to explain the entire nine yards to strangers. I already felt like I had a neon target on my back that made me look different from everyone else on campus. Not to mention, finding an eyebrow pencil to match your new-colored hair is super difficult.

And besides, I felt like it didn't fit me. All the nice compliments in the world couldn't convince me I looked just fine. I didn't feel as cute as people told me I was and I sure as heck didn't have a clue what I was doing with it when I tried styling it.

I've learned a lot from losing my hair and regrowing it out. Mainly lessons of patience, but mostly that hair is just a thing. There are way more pressing issues in the world to worry about. Then again, there are also less pressing issues existing in the world, but for now, while I ride out this ugly phase, I'll learn to appreciate the simplicity and natural beauty of short hair.

About a year ago this month, I got my first haircut (You can read about it here). I had what they call "chemo curls" and they needed to be managed. My stylist ended up giving me the cut for free. Yuck. But nonetheless, she was kind for doing so.

Since then, I have had cuts every 6-8 weeks. It's funny, I always read about cancer survivors grieving about their haircuts because they want to hold on to every inch they've just got back. I can honestly say I've always been generally excited to care for my hair and make it as healthy as I can, but I can also honestly say I was feeling a little hesitant for the first time this last week.

05.09.2019
The Thursday before I moved to Wyoming, I decided to chop off more than half of my hair that I worked so hard to grow out. I was getting to this awkward 80's teenager stage so I figured all one length hair was probably a better path, even if it meant having chin-length hair like 7th grade Abi. Yuck again.

It's funny that I "Yuck" so much because I try and preach that the only reason we as a society "Yuck" is because we as a society deem long hair as beautiful and short hair as different.

I say, rock your hair, learn to love yourself and ultimately, just give yourself the tender care you may need right now.

After all, what makes you beautiful isn't the topical things in life.

But you don't need to have gone through cancer to know that.

Take care,

Abi

P.S. - Let me know in a comment below what your hair means to you. Let's share perspectives.

Journal: My First Haircut After Chemotherapy 05.18.2018

From my journal on May 18, 2018 -- My first haircut post-treatment

Hair pre-diagnosis
I'm very attached to my hair, both metaphorically and quite literally ... I've always had the same style and texture so it became part of my personality and identity. Women, in general, have always been expected to have long hair, and so to cut it (or lose it) often comes as a shock to some. Historically, hair has been a factor in whether people are perceived as attractive and is a sign of youth and health. However, times are changing, but we admittedly still put a lot of our self-worth into our hair.

What I really haven't unpacked in a while is why that is.

Our hair is a very personal thing. For some, it is simply a form of self-expression and for others, it can represent their culture, heritage or other historical significance. [Un]fortunately for me, my hair decides what it wants to represent, and that is all things curly and difficult.

Since treatment ended in October, my hair started growing back in late February. I've been wearing my wig since I received it in the fall, but when my hair started regrowing in, my wig got very uncomfortable, very quickly.

My wig (Nov. 2017)
Bald (Sept. 2017)
I have what they call "chemo curls." Basically, regardless of what hair type, color and texture you had prior to chemotherapy, the hair grows back differently (super curly). This is because when you lose your hair, you also lose the hair follicle. When the hair follicle comes back, it decided to give me, and tons of other patients, super curly, coiled hair.
No more wig (Feb. 2018)

People have been complimenting my hair nonstop since I left my wig at home. They say it reminds them of Audrey Hepburn. Others say the shorter hair really opens up my face and showcases my eyes. Reminded of how it isn't as care-free and easy as people think it is, I thank them and move on with my day.

I often feel isolated on a college campus of beautiful, young women with long, shiny hair. But then I remember I was never one wanting to conform anyway. I often hid behind my long, straight hair like a security blanket and I never wore my hair the way hair was trending at any moment.

It is quite a shock now dealing with very short, extremely curly hair but whatever my hair decides to do, I am forever grateful to have grown it back. I can't wait to play and experiment with it at all of the stages it goes through.

Yesterday was my first haircut since my hair grew back and it had me feeling like a child --  both curious and scared. It was quite the contradicting moment for myself as I had worked so hard to grow my hair to what it is now (a curly mess). Yet, I know if I want it to grow, I have to get regular trims. I had been looking at pixie styles and different cuts for short hair on Pinterest for the past three months but everything I fell in love with was for straight hair.

Pre-Cut (May 2018)

Pre-cut (May 2018)
I thought I would go into my appointment blind, open to any suggestions that professionals had but it all worked out perfectly as I walked out of the salon without a style.

Let me rewind.

I had been searching for a hairdresser ever since I had tangible hair in February. I had also been looking for someone with experience with very short curly hair, specifically chemo curls, but I had also been searching for a time in my schedule to get this thing done.

So here I was mid-May, walking into the salon where my mom newly goes and boy, was it a stunning place. It looks like a house from the outside, but the inside is so chic and edgy.

I met my stylist and she was so kind. She had energy beaming from her and I could really tell she cared about her clients' needs. I got to know her well before we headed back to the shampoo bowl. I was hesitant for this appointment because the "designer women's haircut" was triple the price I was used to and included a wash, cut and style -- which I didn't need half of.

But my goodness, the massage and shampoo was the best thing to happen to me in a while. Better than all shampoos I'd had in the past -- combined. Her products smelled lovely and she took her time. I remembered at this moment why women came to the salon so often, setting aside that they could actually afford it. But I felt like a member of society again.

I didn't want to get up from the shampoo station, but after she was done, we walked back to her chair and this is when the magic happened. Well, nothing special came out of it, but it felt magical. This was the first time I only felt excitement towards this event and I was happy to have healthy hair once she was done.

She didn't cut much off, mostly my thin ends, but made it more symmetrical and in great shape for it to grow out correctly.

It was a quick appointment, even though she did such a great job taking her time to make sure every strand was even and trimmed. She mentioned that cutting short hair was more detailed work than long hair as you can see any misplaced hair or longer strand.

Long, short, straight, wavy or curly, haircuts always feel refreshing once they're done and I couldn't describe that feeling any other way. It felt good to have this checked off my to-do list and to have found someone I trust with my hair.

It was at this appointment that I learned to accept my hair for what it is. I stopped worrying about the length of my hair but the health instead.
Post-cut (May 2018)

I ended the night showing off my new do at the Braves game for a date night with Chris. We're not Braves fans but we are huge baseball fans so the night was nice. The Marlins ended up shutting out the Braves and we had a great time out together.

I didn't feel the difference in my hair until I woke up this morning and felt the difference in washing my hair in the shower. I still use baby shampoo, like when I was bald, but once it grows out more, I plan on using natural products made to enhance healthy curls. No toxic chemicals for me! I'll admit, it definitely feels healthier, even with only the half inch she cut off. Hopefully, my curls will behave better now that the ends aren't thin.

I look forward to seeing how quick it'll grow as well as seeing if it will eventually straighten out to its pre-chemo texture.

--

Love your hair a little more today!

Take care,

Abi

I Moved Across the Country... & Other Misc. Updates

Above our new kitchen table!
Hey all!

I know it's been a while ... like a really big while. Hopefully this will explain it.

(P.s.- photos always turn out funky on mobile sites, so to get the real effect, I highly suggest a desktop for viewing!)

The most insane semester of my college career has concluded. As I word vomited a few too many times, I took six classes this semester on top of two jobs. I also presented my research at a national conference and packed my life up to move 1500 miles away from Atlanta for the summer.

Things have been a little hectic around here and I haven't been able to create the content this blog deserves. Although I plan to launch an entire blog revamp mid-summer, I thought I would share some updates with you first.

Since the heat of the semester, I have applied, interviewed and received the position of Editor-in-Chief at my university's newspaper that I was previously the managing editor at for the past year. I managed to get all A's on my final exams and final projects. And I received a job in wellness out here in my new home, as well as a freelancing gig with Wyoming's widest circulating newspaper.

Inside Kauffman Stadium
Speaking of Wyoming, Chris and I left at 5 a.m. on Saturday, May 11. We drove just over 11 rainy hours through Georgia, Tennessee, Illinois and Missouri to where we stayed in Kansas City for the night. As part of our bucket list to visit every MLB (and NHL!) stadium in America, we saw the Royals play the Phillies at Kauffman Stadium that night before returning to our cozy little Airbnb to catch up on some much-needed Zzz's.

Kansas City was great but I can honestly say that I wouldn't be upset if I never returned, other than driving through it again to get back to Atlanta one day. I was surprised to see as many hills as I did in that part of the country, but I guess I didn't know much about it to begin with.

Walking around the outfield
Kauffman at sunset
The next morning was another early one. We set out for the last leg of our trip, which mainly consisted of staring at nothing through Nebraska. It broke our hearts to still see so much flooding around the Iowa/Nebraska border. Roadworkers were out there making it a one-way road while they built up the land with gravel so that we wouldn't have to drive through a lake that otherwise is supposed to be flat as paper.

Many, many, many long hours later, we crossed the Wyoming border where the speed limit was 80 mph. Never seen that before, but definitely wasn't complaining.

Wyoming is so beautiful, y'all...

Medicine Bow Peak       PC: Bobby Magill
One stretch of highway can be flat with a view for miles, and the next turn can lead you coasting through beautiful hills and mountains.

Chris and I want to visit Medicine Bow Peak one weekend this summer. We had the joy of staring at this beauty for at least 2 hours as we neared closer to our destination. The mountain was in the middle of a national forest and was so entirely huge that it was plainly visible for miles...

As soon as we were about 25 miles out from our home, we approached a new mountain that we just so happen to live at the base of. I tell you, I don't think I'll ever get used to walking out of the grocery store to these beautiful mountains. I thought I was in awe when I first moved to Georgia from flat Wisconsin, but these Wyoming ranges put Georgia/Tennessee to shame.

We've gotten pretty settled in here at our new place. Yesterday we explored downtown a little bit and even made some summer plans to head to Denver one weekend. I'm really hoping to see a Rockies game (and hopefully an icky Cardinals game in August just to cross it off the bucket list).

Pictures have a not-so-lovely way of making mountain ranges look like hills
We even took a little drive up to see the baseball field where Chris will spend most of his summer, which led us to this amazing view...

Pictures do not do it justice at all, but if you're ever in the area, this stop is a must. Hopefully I can get Chris to take me to one of the breweries up here that just so happens to have this view.

This morning, I took a trip down to City Hall to sign some new hire paperwork. It's amazing that everything out here is within blocks
of our place. As soon as I got home, Chris got ready to head to his first day of work. The joys of only having one car...

I'm not quite sure what the rest of the week looks like for me, or for us for that matter, but I will try to keep updates fresh on Facebook and Instagram as they pop up.

Take care,

Abi






How We Raised Over $300 in One Week for Cancer Awareness

It is officially the halfway mark of Ovarian Cancer Awareness month! What have you done for yourself or others in spreading awareness an...