Showing posts with label Chemotherapy. Show all posts
Showing posts with label Chemotherapy. Show all posts

How to Cope With a Cancer Diagnosis




For Day 8 this past weekend, we talked about how to be there for a friend going through a health issue, but what do you do if that person becomes you?

Hearing "you have cancer" can surely turn your world upside-down. You may feel every emotion all at once, or none at all. Know that you're not alone as 1.7 million people are diagnosed each year and about 15.5 million others are cancer survivors.

Sometimes having a plan can be a relief, especially when there are so many unknowns. Here are a few ideas for you to try when faced with a cancer diagnosis:

Assemble your A-Team
Rally a support network so you don't have to carry this burden alone. Your team could be made up of your oncologist, your nurses, other health care professionals, your loved ones, and perhaps a therapist. These will be the ones you can turn to for logistical and emotional support at any time. You may not even have to assemble one as your A-Team may naturally fall into place.

Have someone there at each appointment
There are times when you won't be able to remember everything your doctor said, and that is natural for a lot of people -- with or without a cancer diagnosis. Besides acting as your backup memory, this person can ask questions on your behalf and advocate for your care. It's important to choose someone who is a good listener and has a calming influence on you. This can be someone on your A-Team, or someone completely different.

Your A-team needs to be up-to-speed on your plan of care and your visits anyway, so what better way to keep them informed. (It also gets you out of having these conversations over and over again after your appointment.)

Establish a "communications officer"
If you share your diagnosis with a wider circle, unsolicited advice can be distracting and alarming. If you "hire" a communications officer, you can minimize the direct effects. Your person in this role can update others on your progress, freeing you of the responsibility of responding to various questions. This is especially important if you have a large network of people rooting for you. My mom was always the point of contact for my family members, not only because she was (is) close with them, but also because she was at 90% of my appointments with me too.

Manage the flood of info
Learning some tricks to manage all of the new information swirling around in your brain will help immensely. Start a file to organize your medical records and store all your health documents. This file can also serve as your handy spot to keep all of the questions you write down to ask your care team the next time you see them. My first day of chemo alone, I was given packet after packet of information. Trust me, you'll want a binder for this one.

Make time to process your experience
I slept most of my treatment away, leaving the majority of my processing to the after-years (AKA now, hence this blog). This isn't a bad thing for me, but I would highly suggest to others that they take some time off of work or aside from treatment to get your head straight, prepare, and decide how you're feeling and what you need right now. Whatever your coping style, make time to focus your energy on your own needs and prioritize your care and cure. This is YOUR time.

Breathe
Nowadays, people automatically think "death sentence" when they hear the word "cancer." And although that is highly untrue with modern medicine, it is also highly toxic as it makes cancer patients and their loved ones on edge immediately. If you are diagnosed with cancer, breathe. It's one of the first things you'll more than likely forget to do, but just breathe. Slowly. Take a moment to yourself to garnish each breath as it can bring you closer to a calmer state. Just remember that you have a multitude of supporters by your side, from your loved ones to your health team to those 15.5 million survivors.

You will figure out the rest in time.

Take care of yourselves,

Abi

Going Bald and Back #30DaysOfTeal -- All Things Ab

March 2017

A Love Story (ft. Chemotherapy)

We're officially one week down in the 30 Days of Teal series! And today marks the sweet spot when I lost my hair due to chemotherapy two years ago: the weekend before my birthday.

It was a sunny Saturday, much like today, as I sat on the couch watching Family Feud with whoever was home. I was only one round of chemotherapy in, but already feeling the effects of the chemo -- nausea, fatigue, low energy, loss of appetite.

My scalp was sore the entire week leading up this certain weekend, and I didn't know why. My oncologist told me I would be able to keep my hair with this specific cocktail of chemotherapy drugs. But my hair was matted from not doing anything to it other than wash it, and I lived in baseball caps as I went to each appointment every day.

After a shower the night before, I had no energy to brush my hair, but I knew I should try since it was so neglected at that point. I wrote about this part of the story before (see links below), but in a nutshell: my mom brushed my hair for me and the majority ended up off my head.

My then-boyfriend-now-fiance ended up shaving my head for me on this sunny Saturday, and I specifically remember the new feeling of actual sunlight on my freshly bald head.

What I didn't predict was how that would feel moving forward. (Spoiler alert: not the best.) Without my hair, I constantly flinched at the sight of my own reflection, and I felt I fit the cancer narrative a little too well.

When you're bald, people say all sorts of words to you to make you feel better, or at least to make themselves feel better about not being able to make you feel better. "You look pretty," people would say. (I flinched at that still.) A few people used the word "fierce." I knew the truth -- chemo hadn't affected my eyesight -- but how could I possibly blame them?

I was no model before cancer, but I knew the thrill of a great hair day. I remembered what it felt like to walk outside feeling great, which is why the opposite -- seeing people's blatant stares, or, worse, their pitying looks -- was so hard for me to endure. Forget blending in: I had cancer wherever I went.

It wasn't just the hair on my head. I lost my eyebrows, my eyelashes, my arm and leg hair, most of my body weight and even an organ or two. I barely felt like a woman -- like a human. And since my hair was the most obvious loss, I became obsessed with it. I would check my scalp each day for stubble.

Nothing compared to my own hair, though. I wore hats and a very expensive wig with the help of loved ones' donations. But it was itchy and hot and tight and not my hair. It's not that I didn't want to experiment with my appearance; I just wanted my life and my beauty routine to go back to how it had been.

You'd think there would be advantages to baldness. It's true, without hair to style, I could get ready in five minutes flat (if I wasn't taking the eternity to draw on my eyebrows). But it's even truer that our hair is quite literally a figuratively an extension of ourselves. There's such a quiet and personal ritual that comes with caring for our own hair.

I get that lacking some of the hallmark queues of femininity didn't actually make me less of a woman, but it sure as hell made me feel that way in the moment. So now, two years later, when I am finally able to look in the mirror at the bob I've grown, I have chills about it.

My hair can do no wrong now; I'll complain here and there, but I'm happy to have it. I usually let it airdry so it gets curly and a lil puffy. You cannot miss it. That's the point.

My hair is healthy and getting strong, which in turn, makes me feel healthy and strong (being in remission also helps). I'm proud and relieved that it is back, and I love it down to the annoying frizz. That's why at any point in time, you can find me fiddling around with it, making sure that, yes, it's still there.

_______________

- Fair warning: the following photos in this timeline of hair growth are not in the best layout. Boy, I can't wait for that new website! -

Before Chemo:
Summer 2015

Summer 2014


August 2016


Spring 2017

Spring 2017


Spring 2017

Summer 2017
Summer 2017

During chemo:
August 2017

September 2017
My wig:
November 2017

December 2017
December 2017
After the wig:
February 2018

March 2018

May 2018









December 2018

January 2019
December 2018

April 2019

May 2019

June 2019
July 2019
August 2019
September 2019




For more posts about my hair and its journey, visit:
https://allthingsab.blogspot.com/2019/05/what-its-like-to-lose-your-hair-when.html
https://allthingsab.blogspot.com/2019/05/journal-my-first-haircut-05182018.html

Take care of yourselves,

Abi
____

Don't forget:
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-Join/Donate to Abi's All Stars for the Sept. 14 Teal Trot 5K Walk/Run  https://raceroster.com/events/2019/22757/georgia-ovarian-cancer-alliance-teal-trot-5k-walkrun/pledge/team/197826?fbclid=IwAR2amDcwmkzPQAXEVEQoW-50szLSpmKjPKUnVVLyN2Ha3ROTrIdBEXbRpbg

#30DaysOfTeal My Cancer Resume -- All Things Ab

Abigail M.
abimarmuro@gmail.com
Somewhere in the world of survivorship

Skilled in advocating for patient rights and preventative medicine. Experienced survivor with knowledge of slowing down and listening to your body. Notable vegetarian in sustainable consumption. Ability to recognize what's important in life and that it's time to start living.

Personal Information:______________________________________
Date of Birth: Sept. 10, 1996
Place of Birth: Wisconsin

Life Experience:___________________________________________
American Cancer Society
Ovarian Cancer Patient
Overlooked missed periods Sept. 2016-Mar. 2017
Diagnosed July 26, 2017
Underwent chemotherapy Aug.-Oct. 2017
NED since Nov. 2017

History:__________________________________________________
Fall 2016-Spring 2017:
Series of missed periods
Uterine/pelvic ultrasound

May 2017:
Mass found on left ovary in ultrasound
Referral to oncologist

July 10-11 2017:
Exploratory surgery and tumor removal
Left ovary and fallopian tube removed with stubborn tumor
Stayed overnight with complications due to anesthesia

July 26 2017:
Oncologist confirmed malignancy with staging from Mayo Clinic
Stage I Grade IIa Sertoli Leydig Cell Tumor of the left ovary

August 2017:
Began three rounds chemotherapy - Bleomycin, Etoposide, Cisplatin
Prescribed 24/7 nausea patch

September 2017:
Lost hair
Complications with blood cell counts
Weekly shots of Neupogen to increase white blood cell formation

October 2017:
Finished extended chemotherapy schedule

November 8 2017:
CT scan of chest, abdomen and pelvis

November 10 2017: 
Call confirmed No Evidence of Disease (NED)

February 2018:
Hair started growing in

May 2018:
CT scan to follow up six months post-treatment
Polyp in gallbladder

August 2018:
Ultrasound followup on gallbladder polyp
No growth

November 2018:
One year NED

July 2019:
Two years post-diagnosis

August 2019:
Memory problems continue - "Chemo Brain"

Present:
Balancing fine lines between patient, person and advocate
_______________________________________________

Now on Instagram! @AllThings_Ab

A little more about my cancer diagnosis in detail
PC: Nicole De Khors


What It's Like to Lose Your Hair (When Your Oncologist Said You Wouldn't)

09.23.2017
Why do we care so much about our hair? It's a question we seldom ask because we just really care for and identify with our hair -- plain and simple. It is quite literally part of us, and I never highlighted that thought as much as I did until I lost all of mine.

Let's take a little recap down memory lane, shall we?

July 26, 2017.

The first few words I heard out of my oncologist's mouth in response to "was it cancerous?" was: "Yes ... but at least you get to keep your hair!"

... To which I lost my hair approximately six and a half weeks later. All of it.

A day before my 21st birthday, actually.

It wasn't your typical scene in the shower where I looked down and found clumps of hair falling out to my surprise.

No, it was more painful than that.

You see, I wasn't expecting to lose my hair. So I did absolutely nothing with it, aside from wash it. Days were long from chemotherapy, so I lived in hats. I threw my hair into a low bun, messy as all get-out, and garnished it with a frumpy baseball cap to hide the mess and, let's be real, hide my face.

About four weeks into this fashion statement, my hair started to become matted. I assumed it was from never brushing it. It got messy under that hat anyway, why put in more effort?

Well, the hat ended up pushing all of the hair down and into mini dreadlocks. I didn't care because I slept most of the time, and when I was awake, I was in said hat.

My scalp hurt all the time. One day, I took a shower and just could not run the shampoo through the dreads anymore. I tried to clean my scalp the best I could and said "to hell with the rest."

Showering was a pretty long process, so I went downstairs after I was done and asked my mom to brush my hair like she used to when I was a little girl.

It hurt.

She brushed slowly, and carefully, breaking the chore into small sections. More hair was coming out than was getting brushed, and I didn't notice it until about halfway through the job.

By the end of it all, there was a clump of hair sitting next to us on the couch big enough to make a wig out of.

I didn't look bald or bald-patched from what I could remember of that night, but I did have way less hair than I did when I woke up that day. Granted, I had very long, very thick hair, and a lot of it. That was probably the first time it was all brushed out in weeks. By the time my mom was done brushing it all out, I just looked like someone with very thin, fine hair.

But my scalp continued to hurt, despite being more gentle with it. I still wore hats and that's probably what did it. I actually later learned that it's very common for the hair and skin to hurt or even itch as it falls/comes out.

I had a conversation with someone who had a similar experience and described it to the T when recalling what it was like to lose the hair on her arms and legs. That was actually a good part for me. I always hated my arm hair. It's funny how we can hate the stuff on our body and love the rest on our head.

The day before my birthday I had had enough. The next thing I knew, I was kneeling outside on a cushion from the patio furniture. Chris took a tickly-buzzcut-man thing to my head, and ten minutes later I was bald. Baldish.

It wasn't until my next round of chemo that the tiny hairs fell out once and for all. Such a weird thing to wash your hair with baby soap and still look down to see little hairs going down the drain or sticking to my lathered hands.

Hair is an emotional thing.

When I lost it, I was upset that I not only had "Cancer Patient" written right across my white, shiny skull, but I also was this 21-year-old in college who was supposed to be in the "best years of her life." Seeing all these college girls on campus and thinking to myself, these are the years everyone says is their prime and that was stolen from me.

Hair is truly part of our identity, and us feminine women love to play with it and style it and just have it...

Treatment ended in October 2017 and my hair started to grow back in February 2018. I received compliments from the day I decided to leave my wig at home. So many people said it fit me, or that they wish they were brave enough to have a hairstyle like that ... but it didn't phase me at the time.  I certainly didn't choose that haircut but I obviously wasn't going to explain the entire nine yards to strangers. I already felt like I had a neon target on my back that made me look different from everyone else on campus. Not to mention, finding an eyebrow pencil to match your new-colored hair is super difficult.

And besides, I felt like it didn't fit me. All the nice compliments in the world couldn't convince me I looked just fine. I didn't feel as cute as people told me I was and I sure as heck didn't have a clue what I was doing with it when I tried styling it.

I've learned a lot from losing my hair and regrowing it out. Mainly lessons of patience, but mostly that hair is just a thing. There are way more pressing issues in the world to worry about. Then again, there are also less pressing issues existing in the world, but for now, while I ride out this ugly phase, I'll learn to appreciate the simplicity and natural beauty of short hair.

About a year ago this month, I got my first haircut (You can read about it here). I had what they call "chemo curls" and they needed to be managed. My stylist ended up giving me the cut for free. Yuck. But nonetheless, she was kind for doing so.

Since then, I have had cuts every 6-8 weeks. It's funny, I always read about cancer survivors grieving about their haircuts because they want to hold on to every inch they've just got back. I can honestly say I've always been generally excited to care for my hair and make it as healthy as I can, but I can also honestly say I was feeling a little hesitant for the first time this last week.

05.09.2019
The Thursday before I moved to Wyoming, I decided to chop off more than half of my hair that I worked so hard to grow out. I was getting to this awkward 80's teenager stage so I figured all one length hair was probably a better path, even if it meant having chin-length hair like 7th grade Abi. Yuck again.

It's funny that I "Yuck" so much because I try and preach that the only reason we as a society "Yuck" is because we as a society deem long hair as beautiful and short hair as different.

I say, rock your hair, learn to love yourself and ultimately, just give yourself the tender care you may need right now.

After all, what makes you beautiful isn't the topical things in life.

But you don't need to have gone through cancer to know that.

Take care,

Abi

P.S. - Let me know in a comment below what your hair means to you. Let's share perspectives.

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